My Ear is Broken. Sigh…

I’m in the process of creating a more optimistic, upbeat post but couldn’t get started with that until I vented about my ear issues again. I’ll pour my heart out here and then move on to more positive things.   Last week I wrote about my ear surgery 10 days ago and explained that the surgery was only partially successful. My doctor was able to drill out and remove the bone filler (to which I was having an allergic reaction). Still, he wasn’t able to see well enough to proceed any farther. There was too much bad tissue, swelling and so forth.  He felt it was too risky to continue and decided to pull out and re-assess. He doesn’t know whether my problems are due to the dehiscence (fancy word for hole) in my horizontal semi-circular canal or from the titanium prosthesis he put in place of my stapes or a combination of both.

Ear

So the symptoms I have are the same as they were before this most recent surgery. Right now, I am extremely sensitive to noise and even my own voice (sound makes my vision blur!); my balance is out of whack (each time I take a step everything jumps up and down); I have very loud pulsating in my ear, often times the SHHhing noise is accompanied by jingle bell noises in my head;  I get dizzy and sea sick when I turn my head or nod; plus I get ear aches and head aches as my brain tries to deal with all of this! Oh–and you know what?  When I heard that people with this medical condition can hear sound through their bones, I had to find a tuning fork and find out.  Sure enough, when I place the tuning fork on my ankle bone or hip bone I can hear that pitch in my head!! That’s not a useful parlor trick, though, since no one else around you is terribly impressed by that!! 

Obviously, I’m glad to have a doctor who is careful with my hearing and my future.  But I was definitely left with lots of questions on how to get me to a place where I’m living life normally again.  I saw my doctor this past Monday and we’re back to “wait-and-see” as swelling subsides in my ear and he tries to figure out the next step… 

Will he try to remove the prosthesis (bone) that he placed in there last October? If so, will that make a difference to the dehiscence (hole) in my semi-circular canal?  If he takes the drastic measure of “plugging the semi-circular canal” I will go deaf in that ear (permanently) and I will have debilitating vertigo for at least a month. What I have now is tolerable… most of the time, I guess. Well, unless you catch me at a bad time when I feel like I can’t stand this for five more minutes let alone three more months.

In some ways, I’ve had to whittle down life into the bit-sized chunks I can tolerate. Since we love homeschooling, I reserve most of my energy for that. And since I love writing, there’s no question about continuing to write and share here on the blog. It’s a huge positive/plus in my life now that I’m more house-bound. But to make it through the year,  I’ve had to resign or pull back from various volunteer positions I was holding.  Honestly, I don’t feel much guilt about that because life is just too rough (medically).

Whew–well, I feel like I’ve vented enough about all my problems.  Now I’m going to pour some energy into a positive post!!

My other ear posts:

I doubt too many people will want to delve into much detail, but there was someone who had complications to his ear surgery and happened upon one of my posts. Since others might be looking for stories about superior semi-circular canal dehiscence, BPPV, vertigo or some of the things I’ve gone through the past 8 months I thought I’d paste in links to my other posts.   I didn’t realize how many posts I’ve written about all this… it sure has been a loooooong journey.
Ear Surgery #5 – Trying to Resolve my Noise Sensitivity, Autophony, Balance Issues and More (June 3)
In Crisis, Lies Opportunity for Growth (March 27)
My 4th Ear Surgery (March 18)
My Debilitating Medical Problems and Crazy Symptoms (March 2) – Just prior to my 3rd surgery to remove the prosthesis.
My Ear is Broken – (Feb. 1) Post 2nd surgery, which was only partly successful… and as my symptoms worsened. This explains (with pictures) what’s wrong medically.
Good News, Bad News About My Ear Surgery (Jan. 22)
Mom Down! Why I’m in Surgery Today (Jan. 20 my 2nd surgery) — Surgery to remove the bone filler because I seem to be allergic to the calcium phosphate.
Self-Reflection Questions for New Years (Jan. 2014) I talked about the struggles of dealing with all of my ear issues
Living with Dizziness, Vertigo and Balance Issues (Nov. 9) — After my October surgery when I came down with BPPV, a horrible, horrible case of vertigo… when the little crystals in your ear fall out of place and make the walls spin and makes you incredibly nauseous.
A Rough Week – When None of the Trivial Things Matter and Only the Trivial Things Matter Post-surgery post from my first (of 5) surgery about how great the kids were, the support I got and all that!
My New Vocabulary Word – Cholesteatoma – This was a successful surgery on my right ear… not related to all the drama with my left ear and the 5 surgeries that followed. Jan. 2012, when I found out I need surgery on my right ear. The other posts (mentioned above) were all the recent surgery on my left ear.
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6 Responses

  1. February 1, 2014

    […] | Categories: Homeschool Den, Random Thoughts Prev Post Back To The Homeschool […]

  2. February 1, 2014

    […] | Categories: Homeschool Den, Random Thoughts Prev Post Back To The Homeschool […]

  3. June 2, 2014

    […] and Crazy Symptoms (March 2) – Just prior to my 3rd surgery to remove the prosthesis. My Ear is Broken – (Feb. 1) Post 2nd surgery, which was only partly successful… and as my symptoms worsened. […]

  4. June 2, 2014

    […] and Crazy Symptoms (March 2) – Just prior to my 3rd surgery to remove the prosthesis. My Ear is Broken – (Feb. 1) Post 2nd surgery, which was only partly successful… and as my symptoms worsened. […]

  5. June 2, 2014

    […] and Crazy Symptoms (March 2) – Just prior to my 3rd surgery to remove the prosthesis. My Ear is Broken – (Feb. 1) Post 2nd surgery, which was only partly successful… and as my symptoms worsened. […]

  6. June 2, 2014

    […] and Crazy Symptoms (March 2) – Just prior to my 3rd surgery to remove the prosthesis. My Ear is Broken – (Feb. 1) Post 2nd surgery, which was only partly successful… and as my symptoms worsened. […]

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